Introduction:
If you’re reading this, chances are you’re seeking answers about Autism. Perhaps, you’re a parent suspecting your child may be on the spectrum, or you’ve just received a diagnosis. You’re not alone, and I will do my best to guide you through this journey as someone who has walked a similar path. But first let’s make sure we understand what autism is about, shall we?
Understanding Autism:
Autism, or Autism Spectrum Disorder (ASD), refers to a broad range of conditions characterized by challenges with social skills, repetitive behaviors, speech, and nonverbal communication. Each person with autism is unique; the term “spectrum” reflecting the wide variation in challenges and strengths possessed by each individual.
Recognizing the Signs
Early signs of autism often involve a noticeable delay in language and social development. This can manifest as limited eye contact, lack of response to their name, or lack of interest in others. Repetitive behaviors like hand-flapping, spinning, or lining up toys, are also common.
Getting a Diagnosis
If you suspect your child may have autism, trust your instincts and seek help from a healthcare professional. The process of getting a diagnosis can take time, often involving multiple evaluations. This waiting period can be fraught with worry and a whirlwind of emotions.
Coping During the Wait
The anticipation can be overwhelming. Be gentle with yourself. Find support in communities of other parents who’ve been there. Your local facebook groups for autism specific connections can be a good place to start. You can meet other moms going through similar situations and having someone to talk to who understands exactly what you are going through couldn’t come at a better time to help navigate this unfamiliar terrain together.
Handling the Diagnosis
The day the diagnosis arrives, emotions may run high. You may feel relief at finally having an answer, or grief over the future you had envisioned for your child. It’s okay to mourn that loss, It’s natural. You might be mourning the neurotypical child you’d envisaged but remember, this diagnosis doesn’t change the beautiful, unique individual your child is. The National Autistic Society’s page on understanding and accepting the diagnosis was my sanctuary afterwards. Here’s a link to read more https://www.autism.org.uk/advice-and-guidance/topics/diagnosis/post-diagnosis-support/parents-and-carers
Telling Friends and Family:
Informing loved ones about your child’s diagnosis can be a challenge. Be open, honest, and patient. They may not fully understand at first but remember, they’re learning and adjusting too. Ignore the naysayers as much as possible and do not give room for negativity. Focus on your child and be present for them because that makes all the difference in the way their journey unfolds.
Embracing the New Normal:
Coming to terms with the diagnosis may take time. As you adjust to your new reality, it’s crucial to educate yourself about autism. Seek resources, join support groups, and engage with professionals as you are your child’s best advocate. Equipping yourself with these kinds of information and learning about autism will help you understand how it impacts your child, and how to explore various strategies to support them. Books such as “The Reason I Jump” by Naoki Higashida and “NeuroTribes” by Steve Silberman offer incredible insights into the autistic mind.
Taking care of you too
One other important thing to not take for granted is prioritizing self-care. It’s like the safety demonstration on aeroplanes – secure your own oxygen mask before helping others. Yoga, long walks, or even just a cuppa coffee in silence can do wonders. Your mental health is crucial for your ability to support your child. Check out this helpful guide from Autism Speaks on maintaining your mental health.https://www.autismspeaks.org/tool-kit-excerpt/taking-care-yourself
Conclusion:
Remember, an autism diagnosis is not a closed door—it’s an open one, leading to a path that may be different from the one you envisioned, but no less extraordinary. It’s the beginning of a new journey, full of unique challenges, but also immense rewards. You’ll witness your child grow, learn, and exceed expectations in their own time and way.
Through every step of this journey, remember: You’re not alone. You’re a part of a strong, resilient community of parents who are all on the same voyage. And most importantly, your love and acceptance can make an amazing difference in your child’s world.
With love,
Oke
Mum of four, three of whom are diagnosed with Autism
Note: The suggested resources and information are accurate as of the time of writing. Always consult with a healthcare professional for advice tailored to your circumstances.